Breath Of Life

The life and times of Mr Mark Allen....

Friday, October 02, 2009

Polyps and parties


Hiya folks - Well, well, well - everything still manic in Marks media land.. Life in the last fortnight has included Alan's surprise 30th - me going to hospital to have polyps removed and a new work camera.

The one good/bad thing about going to Warrington Hospital last weekend to have the small op on my nose -meant I can't do any physical exercise for 10 days afterwards...

So I have been getting up to do my medication and then having a 'what do I do next' moment before work.. But since Martyn's accident I have been getting in early anyway to man the office...

There has been loads to promote at the moment - there is a new Lottery grant to display artifacts, loads of 'yooof' stuff, an olympic medalist joining the Council...etc etc.. Am puttng out about three releases a day at the moment and getting more and more regional coverage...

I have my job evaluation coming up next month - where I am appealing against a proposed pay cut.. It is very annoying when you see how much some of poeple get paid - and they want to REDUCE my pay - despite the long hours and hard work I put in...

It is lucky I enjoy the job and the people I work with eh?

I have been promoting a new community choir in Halton - set up by the gorgeous Grethe and Kaya.. Check out www.myspace.com/gretavisions... They are amazing people!

(And probably a lot better with my new camera than I am!)

Well it promises t be an eventful few days with Frank's stag do AND my new home - yep, I signed my life over and exchanged contracts officially today..

I could still be in there for my bday on October 23.... Wish me luck bloggettes....

Huggles

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posted by Mark @ 8:49 pm  

4 Comments:

  • At 9:35 am, Anonymous Anonymous said…

    Hello Mark!
    I have read some of your website for the first time yesterday. Got your name from Anne in Ystad, Sweden; I'm also living i Sweden. I have CF, had my double lungtransplant in 2002 and has felt great until this year. Now my FEV1 has reduced with 27% over six months and after a second bronchoscopy they found out that I have OB - Bronchiolitis Obliterativ, a chronic rejection. Is i right that you've got it too? When did you get it? How have you felt afterwards? How rapidly is the process? I havn't got so much information yet and I am worried of course. Please write me if you have the time, I would appreciate it very much. My e-mail is ingela@ahlms.se /Kind regards Ingela

     

  • At 9:42 am, Blogger Ingela said…

    Hello Mark! I have read your website for the first time yesterday. Got your name from Anne in Ystad, Sweden; I'm also living in Sweden. I have CF, had my double lungtransplant in 2002 and has felt great until lthis year. Now my FEV1 has reduced with 27% over six months and after a second bronchoscopy the found out that I have OB; bronchiolitis obliterativ, a cronic rejection. Is it right that you've got i too? When did you get it? How have you felt since the diagnos? Has it been a rapid process? I havn't got very much information yet, so I am worried of course. Please write me if you have the time, I would appreciate it a lot. My e-mail is ingela@ahlms.se /Kind regards Ingela

     

  • At 9:51 am, Blogger Ingela said…

    Hello Mark! I have read your blogg for the first time yesterday. Got your name from Anne in Ystad; I'm also living in Sweden. I have CF and had my lungtransplant in 2002 and has felt great until this year. Now my FEV1 has reduced with 27% over six months and after a second bronchoscopy they found out that I have OB/BO: bronchiolitis obliterative; cronic rejection. What I have understood, you have it too Mark? When did you get it? How have you felt since? Has it been a rapid process for you? I don't know very much about it yet, but I would appreciate it if you have the time to write me. My e-mail is ingela@ahlms.se /Kind regards Ingela

     

  • At 5:14 pm, Anonymous Anonymous said…

    Hi Mark,
    I know we have emailed in the past, but I don't get a chance to go to your site often.
    I read that you are at 26% FEV1?

    What did your center do for you to maybe improve your numbers, or help with the chronic rejection?

    I have been in chronic for 5 years, and doing great. 5 years ago my FEV1 was 26%, then my lung tx team acted quickly. I was on Prograf, Cellcept and Prednisone. They added azithromycin, and Rapamune. Miracles... I went up to 65% and am just a tad higher than that now. (I work out hard, trying to increase my lung functions). There are other treatments out there, Photopheresis, Inhaled Cyclosporine, Sirolimus, and I think some newer stuff I am not familiar with. At least ask the docs. Are you considering Retransplant?

    Joanne Schum
    luckylungsforjo@aol.com

     

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