Rejection
Hello,
Been in hospial in Newcastle-upon-Tyne with chronic rejection (my body is rejecting my lungs).... Back in Staffordshire for weekend feeling lousy and pumped full of medication to try and halt the slide...... xxx Hope to be back in Widnes tomorrow..
Been in hospial in Newcastle-upon-Tyne with chronic rejection (my body is rejecting my lungs).... Back in Staffordshire for weekend feeling lousy and pumped full of medication to try and halt the slide...... xxx Hope to be back in Widnes tomorrow..
posted by Mark @ 9:57 am
12 Comments:
At 2:13 pm,
Anonymous said…
Tut, that's totally rubbish. Stating the obvious I know..but..
Hugs xx
At 3:27 pm,
Anonymous said…
hi
At 3:31 pm,
Anonymous said…
HI, sorry you feeling sick. Big hug from Marta (and Rich). See you soon!! XX
At 12:50 am,
It's Her said…
Dude! That's a bum. I don't really know what to say, so I'll just say thinking of you. At the risk of sounding like a complete stalker, I shared a lift with you and that nurse A from 27. Well, I'm almost certain it was you, you were in a bed, I stuck my foot out to catch the lift for yous.
I hope you feel considerably less lousy very quickly mate! Rosie xx
At 1:46 pm,
Anonymous said…
Frog Girl...Was I asleep after my biopsy?
At 1:51 pm,
Anonymous said…
Mr A
keep us posted matey, was good to catch up on Sunday and talk about serious subjects like Celeb BB
nice to see you have acquired a stalker too
look after yourself and take it easier
Mr F
At 5:10 pm,
Anonymous said…
Thanks Mr W.....biscuits were nice..were they not?!! lol MARK
At 11:14 pm,
Anonymous said…
Stalker?! Now that's just unnessecary! I am just a concerned reader of this blog is all, who *happened* to bump into him!
Anon, the person I saw in the bed was rather groggy, but awake, but you could tell he was a bit 'out of it'.
I hope you're feeling a bit brighter since then anyway. get well soon! Frog!
At 11:26 am,
Anonymous said…
Mr A
Never got never the biscuits were snaffled by V & C
Keep your pecker up
Mr F
At 4:40 pm,
Anonymous said…
lol....You lot make me giggle! Mark
At 5:27 pm,
Anonymous said…
Mark,
Sorry to hear about he chronic. It happens. I am post 9 years, and in 2004 developed chronic. My center and I worked fast to get me treated, as it seems the sooner something is done the better.
I was on prograf, cellcept, prednisone and when this chronic hit they added Rapamune and Azithromycin...... well it worked wonders. My FEV1 was 25% at chronic,and after a few months on the new meds I got up further and now I am at about 60%.
Also reading your journal, I am so surprised at your "social" outings. Do you wear a mask, or have you ever? Do you catch many infections? They say the more infections, the more chance for chronic.
Rapamune or Sirolimus is a great drug and you need to be at least one year post lung tx, to go on it. There is also inhaled Cyclo, Everlimus and some others.
Let me know if you need some help.
Joanne Schum
luckylungsforjo@aol.com
At 5:28 pm,
Anonymous said…
Mark,
Sorry to hear about he chronic. It happens. I am post 9 years, and in 2004 developed chronic. My center and I worked fast to get me treated, as it seems the sooner something is done the better.
I was on prograf, cellcept, prednisone and when this chronic hit they added Rapamune and Azithromycin...... well it worked wonders. My FEV1 was 25% at chronic,and after a few months on the new meds I got up further and now I am at about 60%.
Also reading your journal, I am so surprised at your "social" outings. Do you wear a mask, or have you ever? Do you catch many infections? They say the more infections, the more chance for chronic.
Rapamune or Sirolimus is a great drug and you need to be at least one year post lung tx, to go on it. There is also inhaled Cyclo, Everlimus and some others.
Let me know if you need some help.
Joanne Schum
luckylungsforjo@aol.com
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